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ADD & ADHD
Children & Adults with
Attention Deficit/Hyperactivity
Disorder
CHADD Represents individuals with
AD/HD for education, advocacy and
support.
CHADD National Office
8181 Professional Place - Suite 150
Landover, MD 20785
(301) 306-7070
Fax: (301) 306-7090
www.chadd.org
Attention Deficit Disorder
Association
ADDA is dedicated to providing
information, resource and networking
opportunities to adults with AD/HD
and the professionals who serve
them.
ADDA
15000 Commerce Parkway, Suite C
Mount Laurel, NJ 08054
(856) 439-9099
Fax: (856) 439-0525
www.add.org
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Allergy & Asthma Network
Mothers of Asthmatics
Founded in 1985, AANMA is a national
nonprofit network of families whose
desire is to overcome, not cope
with, allergies and asthma. The
shortest route to that goal is
knowledge - that's why AANMA
produces the most accurate, timely,
practical, and livable alternatives
to suffering.
Allergy & Asthma Network Mothers of
Asthmatics
2751 Prosperity Ave., Suite 150
Fairfax, VA 22031
1-800-878-4403
Fax: (703) 573-7794
www.aanma.org
American Academy of Allergy,
Asthma, & Immunology
Education, advocacy, support for
patients and caregivers.
American Academy of Allergy, Asthma
& Immunology
555 East Wells Street
Suite 1100
Milwaukee, WI 53202-3823
Phone: (414) 272-6071
Patient Information and Physician
Referral Line: 1-800-822-2762
www.aaaai.org
Asthma & Allergy Foundation of
America
Education, advocacy, research,
support and more.
Asthma and Allergy Foundation of
America
1233 20th Street, NW
Suite 402
Washington, DC 20036
1-800-7-ASTHMA (1-800-727-8462)
www.aafa.org
National Institute of Allergy and
Infectious Diseases
The National Institute of Allergy
and Infectious Diseases (NIAID)
conducts and supports basic and
applied research to better
understand, treat, and ultimately
prevent infectious, immunologic, and
allergic diseases. For more than 50
years, NIAID research has led to new
therapies, vaccines, diagnostic
tests, and other technologies that
have improved the health of millions
of people in the United States and
around the world.
NIAID Office of Communications and
Public Liaison
6610 Rockledge Drive, MSC 6612
Bethesda, MD 20892-6612
(301) 496-5717
www.niaid.nih.gov
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Autism Network for Dietary
Intervention
Providing help and support for
families using a gluten and casein
free diet in the treatment of Autism
and related developmental disorders.
www.autismndi.com
Autism Society of America
ASA is the oldest and largest
grassroots organization within the
autism community. Today, more than
120,000 members and supporters are
connected through a working network
of nearly 200 chapters nationwide.
ASA is dedicated to increasing
public awareness about autism and
the day-to-day issues faced by
individuals with autism, their
families and the professionals with
whom they interact. The Society and
its chapters share a common mission
of providing information and
education, and supporting research
and advocating for programs and
services for the autism community.
Autism Society of America
7910 Woodmont Avenue, Suite 300
Bethesda, Maryland 20814-3067
1-800-3-AUTISM
www.autism-society.org
Center for the Study of Autism
CSA provides information about
autism to parents and professionals
and conducts research on the
efficacy of various therapeutic
interventions. Much of the research
is in collaboration with the Autism
Research Institute in San Diego, CA.
Center for the Study of Autism
c/o Autism Research Institute
4182 Adams Ave.
San Diego, CA 92116
www.autism.org
Cure Autism Now Foundation
Cure Autism Now (CAN) is an
organization of parents, clinicians
and leading scientists committed to
accelerating the pace of biomedical
research in autism through raising
money for research projects,
education and outreach. Founded by
parents of children with autism in
1995, the organization has grown
from a kitchen-table effort to the
largest provider of support for
autism research and resources in the
country. The organization's primary
focus is to fund essential research
through a variety of programs
designed to encourage innovative
approaches toward identifying the
causes, prevention, treatment and a
cure for autism and related
disorders.
Cure Autism Now Foundation
5455 Wilshire Boulevard, Suite 2250
Los Angeles, CA 90036 - 4272
1-888-8-AUTISM
www.canfoundation.org
Families for Early Autism
Treatment
FEAT is a non-profit organization of
parents, educators, and other
professionals dedicated to providing
education, advocacy and support for
the Northern California autism
community.
Families for Early Autism Treatment
P. O. Box 255722
Sacramento, CA 95865-5722
VoiceMail: (916) 843-1536
Fax: (916) 381-5029
www.feat.org
Organization for Autism Research
OAR is the only autism organization
which focuses solely on applied
research.
OAR
2000 North 14th Street, Suite 480
Arlington, VA 22201
(703) 243-9710
www.researchautism.org
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American Autoimmune Related
Diseases Association, Inc.
The only national, non-profit
organization dedicated to addressing
the problem of autoimmunity, the
major cause of chronic illness.
AARDA is dedicated to the
eradication of autoimmune diseases,
alleviation of suffering and the
socioeconomic impact of autoimmunity
through fostering and facilitating
collaboration in the areas of
education, research and patient
services in an effective, ethical
and efficient manner.
22100 Gratiot Ave.
E. Detroit, MI 48021
(586) 776-3900
www.aarda.org
Immune Deficiency Foundation
National organization dedicated to
research, education and advocacy for
the primary immune deficiency
diseases.
Immune Deficiency Foundation
40 W. Chesapeake Avenue
Suite 308
Towson, MD 21204
1-800-296-4433
www.primaryimmune.org
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American Celiac Disease
Alliance
National non-profit advocacy
organization representing the celiac
community and those dedicated to
improving the lives of those with
celiac disease.
American Celiac Disease Alliance
4331 E. Baseline Road
Suite B105 - # 216
Gilbert, AZ 85234-2961
(703) 622-3331
www.americanceliac.org
Celiac Disease Foundation
Provides support, information and
assistance to people affected by
Celiac Disease/Dermatitis
Herpetiformis (CD/DH).
Celiac Disease Foundation
13251 Ventura Blvd. #1
Studio City, Ca. 91604
(818) 990-2354
Fax: (818)990-2379
www.celiac.org
Celiac Sprue Association
CSA is a member-based, non-profit
support organization dedicated to
helping individuals with celiac
disease and dermatitis herpetiformis
and their families worldwide through
information, education and research.
P.O. Box 31700
Omaha, NE 68131-0700
1-877-CSA-4-CSA
www.csaceliacs.org
Celiac Sprue Research Foundation
CSRF is a science-driven public
charity that seeks to improve the
quality of life for Celiac Sprue
patients by promoting research and
development and by enhancing
awareness of the disease among
scientists, healthcare
professionals, consumer product
manufacturers and the general
public.
Celiac Sprue Research Foundation
P.O. Box 61193
Palo Alto, CA 94306-1193
(650) 251-9865
www.celiacsprue.org
Center for Celiac Research
University of Maryland Center for
Celiac Research is an institution
engaged in clinical care, diagnostic
support, education, and clinical and
basic science research in Celiac
Disease. The paramount goal of the
Center for Celiac Research is to
increase the awareness of Celiac
Disease in order to provide better
care, better quality of life, and
more adequate support for the Celiac
Disease community.
University of Maryland
School of Medicine
Center for Celiac Research
20 Penn Street, Room S303B
Baltimore, MD 21201
www.celiaccenter.org
Gluten Intolerance Group of North
America
The mission of the Gluten
Intolerance Group of North America
is to provide support to persons
with gluten intolerances, including
celiac disease, dermatitis
herpetiformis, and other gluten
sensitivities, in order to live
healthy lives.
GIG
31214 124th Ave SE
Auburn WA 98092-3667
(253) 833-6655
Fax: (253) 833-6675
www.gluten.net
R.O.C.K. (Raising Our Celiac
Kids)
Free support group for parents,
families, and friends of kids on the
gluten-free diet for any reason:
celiac disease, gluten intolerance,
autism, ADD/ADHD, allergies, or
personal preference.
(858) 395-5421
www.celiackids.com
University of Chicago Celiac
Disease Program
Dedicated to raising diagnosis rates
and meeting the critical needs of
people affected by celiac disease
through education, research and
advocacy.
The University of Chicago Celiac
Disease Program
5839 S. Maryland Avenue, MC 4069,
Room C-491
Chicago, Illinois 60637
Celiac Disease Hotline: (773)
702-7593 (Monday - Friday)
Fax: (773) 702-0666
www.celiacdisease.net
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CROHN'S DISEASE,
COLITIS & IBS
Crohn's & Colitis Foundation
of America
Non-profit, volunteer-driven
organization dedicated to finding
the cure for Crohn's disease and
ulcerative colitis.
Crohn's & Colitis Foundation of
America
386 Park Avenue South, 17th Floor
New York, NY 10016
1-800-932-2423
www.ccfa.org
International Foundation for
Functional Gastrointestinal
Disorders
The complete resource for
trustworthy gastrointestinal (GI)
disorder information, support and
assistance from the International
Foundation for Functional
Gastrointestinal Disorders (IFFGD),
a nonprofit education and research
organization.
IFFGD
P.O. Box 170864
Milwaukee, WI 53217-8076
1-888-964-2001
Fax: (414) 964-7176
www.iffgd.org
Reach Out for Youth with Ileitis
& Colitis, Inc.
Founded in 1979 to help children
with Crohn's disease and ulcerative
colitis. We provide a hand to hold,
a shoulder to lean on, and the
voices of experience from those who
have raised children with Crohn's
and related diseases and know how
important support and education is
for the child and the family.
(631) 293-3102
www.reachoutforyouth.org
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DIABETES &
ENDOCRINE DISORDERS
American Diabetes Association
The American Diabetes Association is
the nation's leading non-profit
health organization providing
diabetes research, information and
advocacy. Founded in 1940, the
American Diabetes Association
conducts programs in all 50 states
and the District of Columbia,
reaching hundreds of communities.
The mission of the Association is to
prevent and cure diabetes and to
improve the lives of all people
affected by diabetes.
American Diabetes Association
ATTN: National Call Center
1701 North Beauregard Street
Alexandria, VA 22311
1-800-DIABETES
www.diabetes.org
Diabetes Exercise & Sports
Association
DESA exist to enhance the quality of
life for people with diabetes
through exercise and physical
fitness.
DESA
8001 Montcastle Dr.
Nashville, TN 37221
1-800-898-4322
Fax: (615) 673-2077
www.diabetes-exercise.org
Hormone Foundation
Dedicated to serving as a resource
for the public by promoting the
prevention, treatment and cure of
hormone-related conditions through
outreach and education.
The Hormone Foundation
8401 Connecticut Avenue, Suite 900
Chevy Chase, MD 20815-5817
1-800-HORMONE
www.hormone.org
National Institute of Diabetes,
Digestive & Kidney Diseases
NIDDK conducts and supports research
on many of the most serious diseases
affecting public health.
Office of Communications & Public
Liaison
NIDDK, NIH
Building 31. Rm 9A06
31 Center Drive, MSC 2560
Bethesda, MD 20892-2560
www.niddk.nih.gov
Juvenile Diabetes Research
Foundation International
JDRF is the leading charitable
funder and advocate of type 1
(juvenile) diabetes research
worldwide. The mission of JDRF is to
find a cure for diabetes and its
complication through the support of
research.
Juvenile Diabetes Research
Foundation International
120 Wall Street
New York, NY 10005-4001
Phone: 1-800-533-CURE (2873)
Fax: (212) 785-9595
www.jdrf.org
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FOOD ALLERGIES &
INTOLERANCES
Feingold Association of the
U.S.
This organization features a program
that analyzes foods and food
ingredients that are harmful or
controversial in diets. They list
links to companies and stores that
sell products that are safe by their
standard.
Feingold Association of the United
States
554 East Main Street Suite 301
Riverhead, NY 11901
1-800-321-3287
www.feingold.org
Food Allergy & Anaphylaxis
Network
Informative site about food
allergies. The site offers allergy
updates regarding foods and
products, a monthly recipe, books,
services and education.
FAAN
11781 Lee Jackson Hwy., Suite 160
Fairfax, VA 22033-3309
1-800-929-4040
Fax: (703) 691-2713
www.foodallergy.org
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Hypoglycemia Support
Foundation
In 1980, Roberta Ruggiero
established the HSF to inform,
support and encourage hypoglycemics
and the public about this too often
misunderstood and misdiagnosed
disease.
Hypoglycemia Support Foundation,
Inc.
PO BOX 451778
Sunrise, FL 33345
www.hypoglycemia.org
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Children's PKU Network
CPN was founded in 1991 to address
the special needs and concerns of
individuals with PKU and their
families. CPN is a non-profit
organization dedicated to
maintaining an agenda of public
awareness, education and direct
assistance through a variety of
programs, to help people with PKU
and other metabolic disorders reach
their full potential.
Children's PKU Network
3790 Via De La Valle, Ste 120
Del Mar, CA 92014
1-800-377-6677
Fax: (858) 509-0768
www.pkunetwork.org
National PKU News
National PKU News is a non-profit
organization located in Seattle,
Washington. It is dedicated to
providing up-to-date, accurate news
and information to families and
professionals dealing with
phenylketonuria.
www.pkunews.org
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The Oley Foundation
Non-profit organization that
provides information and
psycho-social support to consumers
of home parenteral (IV) and enteral
(tube-fed) nutrition (homePEN),
helping them live fuller, richer
lives. The Foundation also serves as
a resource for consumer's families,
homePEN clinicians and industry
representatives, and other
interested parties.
The Oley Foundation
214 Hun Memorial, MC-28
Albany Medical Center
Albany, NY 12208-3478
1-800-776-OLEY
Fax: (518) 262-5528
www.oley.org
Pediatric/Adolescent
Gastroesophageal Reflux Association
PAGER is a non-profit organization
that provide information and support
to parents and children (infants to
teens) dealing with Gastroesophageal
Reflux (GER).
Pediatric Adolescent
Gastroesophageal Reflux Association,
Inc - PAGER
P.O. BOX 486
Buckeystown, MD 21717-0486
(301) 601-9541
www.reflux.org
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